Cystic Fibrosis Community Care provides information and support to individuals and families living with CF throughout NSW and Victoria.
For more details and to get in contact with a member of our support team, please contact support@cfcc.org.au or 1300 023 222.
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At CFCC, we provide information about CF to the CF community and raise awareness about CF in the broader community through a range of collaborations and events. Our team works with people who have CF, their families and friends, newly diagnosed families, people who want to know more about CF carrier screening, schools, workplaces, and more.
CF Strong is our online CF information centre, with information and stories curated for adults and young people living with CF.
CF Baby Steps is our online resource for newly diagnosed families.
CF Smart is an online resource for teachers and educators.
For more information, contact a member of our team at support@cfcc.org.au or 1300 023 222.
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I’d like someone to visit me while I’m in hospital
We are available to visit you and/or your loved one while in hospital at the CF Centres in NSW and Victoria. So, if you are an inpatient or planning a hospital admission, please feel free to give us a call or send us an email, so we can come by.
For more information, contact a member of our team at support@cfcc.org.au or 1300 023 222.
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Benefits Navigation Service
It can be difficult to understand what government supports and other benefits you may be able to access. Our Benefits Navigation Service provides a range of practical assistance and social work support to our members to help with accessing resources and navigating government and local support systems. This includes assistance navigating Centrelink, NDIS, housing, the Disability Support Pension, Healthcare Card, Medicare, and many others.
You can organise a discussion with one of our Case Managers by contacting support@cfcc.org.au or 1300 023 222.
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Mental Health Support
We understand the challenges that can arise when living with, and caring for someone with, a chronic illness. Our experienced staff can provide:
- short-term counselling and referrals to services for long-term counselling needs
- case management
- psychosocial assessment
- palliative care support.
All referrals to our mental health support are treated with the strictest of confidence. You can make a self-referral by contacting our team directly at support@cfcc.org.au or 1300 023 222.
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Individual Advocacy
We recognise the diverse range of issues faced by people with CF and their families, and we provide support with advocacy. Cystic Fibrosis Community Care advocates for members at a local, state and national level and works with other organisations to lobby for improvements for the CF community.
We also work one to one with members to provide support for self-advocacy, as well as advocating on behalf of the individual.
We can assist you to exercise your rights and achieve the outcomes you want. We can help make sure you are not disadvantaged due to any disability, your age, gender, sexual preference or your cultural background. We also have the expertise and experience in handling cases that often affect people living with CF.
There may be times when you feel it is hard to speak up for yourself, so an advocate can help you:
- clarify what is happening and sort out any confusion or misunderstandings
- contact the relevant service, discuss the issue and the options for solutions
- support you to negotiate a complaints process
- support you at meetings
- write a support letter.
We can also provide you with advocacy assistance and/or referrals to the appropriate service.
For more information, contact a member of our team at support@cfcc.org.au or 1300 023 222.
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Transition Support
Beginning from around the age of 15, your CF clinic team will begin the process to transition your CF care from a children’s hospital to an adult hospital. The transition process will equip you with knowledge, so you know what to expect.
It’s not a fast handover to the adult team, it’s a gradual process where you are encouraged to learn more about your CF care, where your clinicians will begin involving you more in decision-making.
CF Strong is our online CF information centre, with information and stories curated for young people living with CF. It contains information and stories on transitioning to adult care, taking control of your CF, balancing study and career, travel, personal finances, and many more.
Transition can be a time of uncertainty, and we’re here to help at every step along the way. If you have questions, and would like to speak to one of our staff for support, you can do so by contacting support@cfcc.org.au or 1300 023 222.
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Career Support
Wondering if and how to tell your employer about your CF, or want to talk through your career options? How to balance work and CF, and what alterative study pathways might be available for your chosen career? Our Support Team are available to answer these questions, plus many more.
Time-limited career counselling is also available on a needs basis for CFCC members living with CF. To find out more, contact support@cfcc.org.au or 1300 023 222.
You might also want to visit CFStrong, our online CF information centre, with information and stories curated for adults young people living with CF. It contains resources for preparing for job interviews, career planning, and stories from people living with CF who are navigating study and a career.
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