Cystic Fibrosis Community Care provides a range of information and support services to individuals and families living with CF throughout NSW and Victoria. This includes advocacy, information, education and awareness, community and hospital support, and referrals.
All our programs are available in both NSW and Victoria unless otherwise mentioned. To be eligible to receive our programs and services, you must be a current member of Cystic Fibrosis Community Care.
For more details, or to refer yourself or family for any of our services, please contact us on:
support@cfcc.org.au or 1300 023 222
Email Call
See information for:
We provide information about CF to the CF community and raise awareness about CF in the broader community through a range of services and events.
Information line
We provide information about living with CF, social work support and referrals. We work with people who have CF, their families and friends, newly diagnosed families, people who want to know more about CF carrier screening, schools, workplaces, and more.
For more information:
support@cfcc.org.au or 1300 023 222
Email Call
Or visit:
Visit website
Visit website
- CF Smart – Information for educators, including early childhood, primary school and secondary/high school
Visit website
Speakers’ program (VIC)
Our team of trained volunteer speakers can share their own knowledge and experience of living with CF with community groups, schools, sporting clubs, tertiary institutions and businesses.
Speakers include adults living with CF, and parents, partners, siblings and grandparents of people with CF.
Presentations are usually 30 minutes in length with additional time for questions. Presentations can be arranged either during the day or outside of working hours. A minimum of three or four weeks notice is required for any presentation request.
A donation of $100 or more to help cover speaker’s travel expenses and support the ongoing work of Cystic Fibrosis Community Care would be sincerely appreciated.
For more information:
Email VIC Call VIC
I’d like someone to visit me while I’m in hospital
We regularly make inpatient hospital visits at the CF Centres in NSW and Victoria. So if you are an inpatient or planning a hospital admission, please feel free to give us a call so we can come by.
For more information:
Email NSW Call NSW
Email VIC Call VIC
I’d like help with talking with my clinical team/workplace/child’s school/community organisation
We recognise the diverse range of issues faced by people with CF and their families, and we provide support with advocacy. Cystic Fibrosis Community Care advocates for members at a local, state and national level and works with other organisations to lobby for improvements for the CF community.
We also work one to one with members to provide support for self-advocacy, as well as advocating on behalf of the individual.
We can assist you to exercise your rights and achieve the outcomes you want. We can help make sure you are not disadvantaged due to any disability, your age, gender, sexual preference or your cultural background. We also have the expertise and experience in handling cases that often affect people living with CF.
There may be times when you feel it is hard to speak up for yourself, so an advocate can help you:
- clarify what is happening and sort out any confusion or misunderstandings
- contact the relevant service, discuss the issue and the options for solutions
- support you to negotiate a complaints process
- support you at meetings
- write a support letter.
We can also provide you with advocacy assistance and/or referrals to the appropriate service.
For more information:
Email NSW Call NSW
Email VIC Call VIC
I’d like help with government supports, including the NDIS, Centrelink, housing, employment
We provide a range of practical assistance and social work support to our members to help with accessing resources and navigating the health system. This includes:
For more information:
Email NSW Call NSW
Email VIC Call VIC
I’d like information & support for my child’s teacher, school, kindergarten or child care centre
Support for school children and their families
We work with school children and families to ensure that all children with CF can have the best learning opportunities and experiences while managing their CF. We do this through:
- exploring strategies with parents and children with CF to support their learning
- collaborating with families, teachers and other educational professionals to find the most effective ways to support children with CF
- speaking to school staff to raise awareness about CF and the impacts on health and learning
- providing educational resources and referrals to other services
- liaising with medical professionals and hospital teachers.
We also run information sessions for parents about managing CF and school. See our events section for dates.
We provide financial assistance with schooling through scholarships (VIC) and a volunteer tutor program
For more information:
Email NSW Call NSW
Email VIC Call VIC
Resources for teachers and educators
The CF Smart website provides a wide range of educational resources about CF for teachers, parents and students, including:
- four free interactive E-learning training modules about CF
- information booklets and fact sheets for early childhood, primary and high-school-age students, and teachers
- videos and personal stories about living with CF.
We can also provide support for teachers through:
- giving CF presentations to staff in school or by video conference or phone
- discussing individual strategies for working with student with CF
- providing information about extra educational resources and services.
CF Education Days are run by the Royal Children’s Hospital and Monash Children’s Hospital at the start of each school year. These provide detailed information about CF and how to create a CF-friendly environment. See our events section for dates.
For more information:
- CF Smart – Information for educators, including early childhood, primary school and secondary/high school
Visit website
Email VIC Call VIC
I’m a health professional & work with clients with CF. Where can I learn more?
Interclinic provides an opportunity for NSW CF specialty clinics to engage with each other to explore and share knowledge regarding the impacts of living with CF. Each year, we have presenters and speakers who can provide new insights and clinical experience to the NSW adult and paediatric teams.
We hold two interclinic sessions a year in NSW.
For more information:
Email NSW Call NSW