We are developing a new national online resource to provide information and support to young people living with CF and their families as they prepare, and move, into adulthood and the adult health care system.
Our CF Transition project: a new resource for young people living with CF and their parents
For people living with CF aged 13-19 years and their parents, the process of preparing and moving from paediatric to adult health care can be a stressful time. Young people start to take more control of their health decisions, prepare to move to the adult health care system, start to navigate Centrelink and Medicare, legally become an adult which means changes to privacy and who can make decisions on their behalf, and more.
We are very excited that we have recently received funding from the Australian Government to develop a new national online resource to provide information and support to young people living with CF and their families during this transition period.
This new free online resource will include podcasts, videos, written content and online learning. It will be based on our CFStrong.org.au resource that we developed with, and for adults living with CF. We will work with the community and CF clinics from around Australia to bring together information and share stories of transition experiences for young people living with CF and their parents.
We are just starting work on this new resource and want to make sure it is relevant and useful, with the information young people and their parents need in the format they prefer it in. This means that we want to hear from you. If you would like to be involved and share your experience or find out more please email firstname.lastname@example.org.
This resource is being kindly funded by the Australian Government Department of Social Services. Visit www.dss.gov.au for more information.