Dialog Box

CFCC Tax Appeal 2022

The power of giving can change their lives

The power of giving can change their lives

 "I'm sorry to be the one to tell you, its cystic fibrosis…there is no known cure.” The rest of the information received on that fateful day was a blur to Kim, Mum of 12-day old Archer.

Within 24 hours of learning their beautiful boy had been diagnosed with cystic fibrosis a life-limiting condition that affects the lungs and has no cure, Kim and her husband, Nick, were sitting in the specialist's office with their world crashing down even further around them as they learnt that a number of children with cystic fibrosis will not live past their twenties. 

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Six-year-old Ben started school last year. His life revolves around daily therapy, medication and avoiding the ‘germs’ that can threaten his life and lead to extended stays in hospital. 

As Mum Virginie says, “there is no day off from cystic fibrosis…but with thanks to your support, we don’t let it stop us living”.

Ben’s daily exercise and nebuliser routine

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