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What is CF?

Cystic fibrosis is a genetic condition

Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 

CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.

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Living with CF

Everyone's experience with CF is different

Children

Learn more about CF so you can be confident in managing your child's condition.

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Young People

During your teenage years, you start to take over more management of CF from your family.

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Adults

Tools, information and advice to support you to live your life while managing CF.

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Carers

When you care for someone living with CF, looking after yourself needs to be important part of the plan.

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It takes a community to care for CF

Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.

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Our impact

We provide practical support

870

 subsidised items of physiotherapy equipment

6,497

responses to requests for information, support & advocacy

353

responses to requests for emergency financial assistance

626

educators have undertaken CFSmart online learning

Who are the people living with CF?

3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their CF.

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News

We are looking for a Digital Content Producer to join our team

News

Trikafta® (elexacaftor/tezacaftor/ivacaftor) is a new triple combination therapy that may benefit many people living with CF.

News

Cystic Fibrosis Community Care is working to keep everyone in our community safe during the COVID-19 (coronavirus) pandemic. We have compiled a list of up-to-date resources on websites for you to visit, depending on what questions you might have.

Stories

Shaun writes about the importance of anger in dealing with your CF diagnosis

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