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Cystic Fibrosis Community Care
'More than a lung disease'

Support - Education - Advocacy - Research

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“It’s been one bad thing after another. I can’t have Trikafta. I can’t have a lung transplant because of my infection. I have no treatment options left, other than what I’m on now. That’s super disheartening.” Together we can strengthen and support people like Caitlin, so they can lead a long and fulfilling life.

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CFStrong

CFStrong is designed to inform and educate young people and adults who either have or know someone with cystic fibrosis (CF). Learn about various topics through our broad range of articles, conversations and personal stories!

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How we help

Find out more about what we do to support people living with CF and their families.

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What is CF?

Cystic fibrosis is a genetic condition

Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 

CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.

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Living with CF

Everyone's experience with CF is different

Children

Learn more about CF so you can be confident in managing your child's condition.

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Young People

During your teenage years, you start to take over more management of CF from your family.

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Adults

Tools, information and advice to support you to live your life while managing CF.

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Carers

When you care for someone living with CF, looking after yourself needs to be important part of the plan.

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Fundraise for us

It takes a community to care for CF

Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.

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Our impact

We provide practical support

635

 subsidised items of physiotherapy equipment

5,533

responses to requests for information, support & advocacy

167

responses to requests for emergency financial assistance

188

responses to requests for education support

Who are the people living with Cystic Fibrosis?

3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their condition.




Latest News View all news

Reproductive carrier testing for three common inherited conditions receives full public funding in Australia

News

From today, reproductive carrier testing for cystic fibrosis, fragile X syndrome and spinal muscular atrophy is now available for every eligible Australian, thanks to a new Medicare item number, allowing people to make more informed choices.

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CEO Blog – Mental Health and Cystic Fibrosis in Australia

News

The impact of CF on mental health is profound and multifaceted - individuals often experience a complex interplay of emotional, psychological, and social challenges in addition to their physical symptoms.

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Today is World CF Day, the perfect day to write my First CEO Blog

News

Today is World CF Day, a day where worldwide we aim to raise awareness for cystic fibrosis. Of course, at Cystic Fibrosis Community Care this is our role each and every day. Today I am also sitting down to write my very first blog post as CEO of CFCC.

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Harry Coffey, one of Victoria’s top jockeys announced as this year’s Great Strides Ambassador

News

Great Strides is set to attract over 1000 people who will stride for CF, enjoying a great family atmosphere, entertainment, food and of course exercise! One of those striding in 2023 is one of Victoria's top jockeys, Harry Coffey.

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Cystic Fibrosis Community Care
enquiries@cfcc.org.au

1300 023 222

Head Office: 282 Neerim Rd, Carnegie VIC 3163



Cystic Fibrosis Community Care acknowledges the Traditional Custodians of the land on which we work, live and gather, and we pay our respects to Elders past, present and emerging.

AUST

© 2023 Cystic Fibrosis Community Care

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