Dialog Box

What is CF?

Cystic fibrosis is a genetic condition

Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 

CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.

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Living with CF

Everyone's experience with CF is different

Children

Learn more about CF so you can be confident in managing your child's condition.

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Young People

During your teenage years, you start to take over more management of CF from your family.

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Adults

Tools, information and advice to support you to live your life while managing CF.

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Carers

When you care for someone living with CF, looking after yourself needs to be important part of the plan.

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Fundraise for us

It takes a community to care for CF

Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.

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Our impact

We provide practical support

635

 subsidised items of physiotherapy equipment

5,533

responses to requests for information, support & advocacy

167

responses to requests for emergency financial assistance

188

responses to requests for education support

Who are the people living with Cystic Fibrosis?

3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their condition.



Upcoming Events

Join us at one of our events to help support the 3600 Australian's living with cystic fibrosis. 

High Tea,
Sydney

8th September 2023.

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Great Strides, Melbourne

17th September 2023.

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A Night 4 CF, Melbourne

20th October 2023.

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A Night 4 CF, Sydney

10th November 2023.

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Latest News View all news

News

Today is World CF Day, a day where worldwide we aim to raise awareness for cystic fibrosis. Of course, at Cystic Fibrosis Community Care this is our role each and every day. Today I am also sitting down to write my very first blog post as CEO of CFCC.

News

Great Strides is set to attract over 1000 people who will stride for CF, enjoying a great family atmosphere, entertainment, food and of course exercise! One of those striding in 2023 is one of Victoria's top jockeys, Harry Coffey.

News

UPDATE: The CF modulator drug Orkambi (lumacaftor/ ivacaftor) has been recommended by the PBAC for listing on the PBS for ages 1-2 in Australia.

News

Community and Patient Preference Research (CaPPRe), an independent research organisation, is conducting research with people who have been diagnosed with cystic fibrosis (CF).

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