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What is CF?

Cystic fibrosis is a genetic condition

Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 

CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.

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Living with CF

Everyone's experience with CF is different


Learn more about CF so you can be confident in managing your child's condition.

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Young People

During your teenage years, you start to take over more management of CF from your family.

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Tools, information and advice to support you to live your life while managing CF.

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When you care for someone living with CF, looking after yourself needs to be important part of the plan.

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Fundraise for us

It takes a community to care for CF

Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.

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Our impact

We provide practical support


 subsidised items of physiotherapy equipment


responses to requests for information, support & advocacy


responses to requests for emergency financial assistance


responses to requests for education support

Who are the people living with Cystic Fibrosis?

3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their condition.

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From today, reproductive carrier testing for cystic fibrosis, fragile X syndrome and spinal muscular atrophy is now available for every eligible Australian, thanks to a new Medicare item number, allowing people to make more informed choices.


The impact of CF on mental health is profound and multifaceted - individuals often experience a complex interplay of emotional, psychological, and social challenges in addition to their physical symptoms.


Today is World CF Day, a day where worldwide we aim to raise awareness for cystic fibrosis. Of course, at Cystic Fibrosis Community Care this is our role each and every day. Today I am also sitting down to write my very first blog post as CEO of CFCC.


Great Strides is set to attract over 1000 people who will stride for CF, enjoying a great family atmosphere, entertainment, food and of course exercise! One of those striding in 2023 is one of Victoria's top jockeys, Harry Coffey.