Dialog Box

What is CF?

Cystic fibrosis is a genetic condition

Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 

CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.

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Living with CF

Everyone's experience with CF is different

Children

Learn more about CF so you can be confident in managing your child's condition.

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Young People

During your teenage years, you start to take over more management of CF from your family.

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Adults

Tools, information and advice to support you to live your life while managing CF.

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Carers

When you care for someone living with CF, looking after yourself needs to be important part of the plan.

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Fundraise for us

It takes a community to care for CF

Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.

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Our impact

We provide practical support

635

 subsidised items of physiotherapy equipment

5,533

responses to requests for information, support & advocacy

167

responses to requests for emergency financial assistance

188

responses to requests for education support

Who are the people living with CF?

3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their CF.

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News

Join Cystic Community Care in demanding #TrikaftaNOW

News

Bringing awareness to CF can undoubtedly help in educating others on the realities of living with CF, sharing stories and in furthering fundraising efforts, helping to fund support services and research to find a cure.

News

Latest update on the Pharmaceutical Benefits Advisory Committee (PBAC) decision on recommending Trikafta for children aged 6-11 years old.

News

Our Chair, Kath Kaspar and CEO, Andre Carvalho provide an end of year message for all our supporters and members.

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