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Join us at Albert Park Lake, 17th September.
CFStrong is designed to inform and educate young people and adults who either have or know someone with cystic fibrosis (CF). Learn about various topics through our broad range of articles, conversations and personal stories!
Find out more about what we do to support people living with CF and their families.
Melbourne’s Night for CF promises to be a night to remember with entertainment, dancing and special guest MC Lyndall Grace from MAFS. Friday 20th October 2023
Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians.
CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.
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Learn more about CF so you can be confident in managing your child's condition.
During your teenage years, you start to take over more management of CF from your family.
Tools, information and advice to support you to live your life while managing CF.
When you care for someone living with CF, looking after yourself needs to be important part of the plan.
Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.
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3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their condition.
Join us at one of our events to help support the 3600 Australian's living with cystic fibrosis.
8th September 2023.
17th September 2023.
20th October 2023.
10th November 2023.
News
Today is World CF Day, a day where worldwide we aim to raise awareness for cystic fibrosis. Of course, at Cystic Fibrosis Community Care this is our role each and every day. Today I am also sitting down to write my very first blog post as CEO of CFCC.
Great Strides is set to attract over 1000 people who will stride for CF, enjoying a great family atmosphere, entertainment, food and of course exercise! One of those striding in 2023 is one of Victoria's top jockeys, Harry Coffey.
UPDATE: The CF modulator drug Orkambi (lumacaftor/ ivacaftor) has been recommended by the PBAC for listing on the PBS for ages 1-2 in Australia.
Community and Patient Preference Research (CaPPRe), an independent research organisation, is conducting research with people who have been diagnosed with cystic fibrosis (CF).
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