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What is CF?

Cystic fibrosis is a genetic condition

Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 

CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.

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Living with CF

Everyone's experience with CF is different

Children

Learn more about CF so you can be confident in managing your child's condition.

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Young People

During your teenage years, you start to take over more management of CF from your family.

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Adults

Tools, information and advice to support you to live your life while managing CF.

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Carers

When you care for someone living with CF, looking after yourself needs to be important part of the plan.

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It takes a community to care for CF

Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.

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Our impact

We provide practical support

635

 subsidised items of physiotherapy equipment

5,533

responses to requests for information, support & advocacy

167

responses to requests for emergency financial assistance

188

responses to requests for education support

Who are the people living with Cystic Fibrosis?

3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their condition.




Latest News View all news

News

Cystic Fibrosis Community Care welcomes the healthcare and cost of living measures announced in the 2024-25 Federal Budget last week. These measures will support the health, wellbeing and financial pressure experienced by our members with Cystic Fibrosis

News

Vertex Pharmaceutical’s new next-in-class, triple combination modulator has been submitted for approval to the U.S. Food and Drug Administration (FDA) and the European Medicines Agency (EMA), with the Australian approval process for those aged 6+ planned

News

Cystic Fibrosis Community Care (CFCC) is pleased to announce that Mr. Sam Develin, has been elected as an independent non-executive director of CFCC.

News

Cystic Fibrosis Community Care (CFCC) is pleased to announce that Mr. Cody Sheehan, has been elected as an independent non-executive director of CFCC.

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