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“I was so scared. But the support I received from CFCC helped me to feel new again.”
CFStrong is designed to inform and educate young people and adults who either have or know someone with cystic fibrosis (CF). Learn about various topics through our broad range of articles, conversations and personal stories!
Find out more about what we do to support people living with CF and their families.
Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians.
CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.
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Learn more about CF so you can be confident in managing your child's condition.
During your teenage years, you start to take over more management of CF from your family.
Tools, information and advice to support you to live your life while managing CF.
When you care for someone living with CF, looking after yourself needs to be important part of the plan.
Every donation received and every dollar raised no matter how big or small, has the power to make a difference to the life of someone living with cystic fibrosis. All funds raised for Cystic Fibrosis Community Care help us to deliver support services and improve the lives of people living with CF, their families and carers.
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3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change. Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their C
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This May, we celebrate, remember and support people living with Cystic Fibrosis.
Find out how you can get involved.
Transitioning to adult care means the opportunity to have greater control over your health and health care! This webinar covers what your future can look like. Your study choices? Your career choices? Join us in this webinar to hear from others living with CF who are following their passions.
On 65 Roses Day, 26th May, you can buy a Virtual Rose to support people living with Cystic Fibrosis.
News
You’re probably familiar with the phrase: ‘it takes a village’. Or, as we like to say, a community. That’s because a diagnosis of cystic fibrosis can change everything. Your work, your movement, your hobbies, your speech.
On Thursday, 27 April, we had the opportunity to welcome CFCC members, Board Directors, and staff over Zoom to hold our Annual General Meeting for the 2022 financial year.
CF Care has changed! A lot of people with CF are using more virtual care/telehealth instead of attending hospital. Researchers from the CF Community are very keen to hear what you think.
Orkambi (lumacaftor/ ivacaftor) has been placed on the Pharmaceutical Benefits Advisory Committee (PBAC) agenda for July, to be considered for listing on the PBS for children aged 1-2 years with cystic fibrosis and two 508del mutations.
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